| My
name is Jim Maddern, My wife,Julie was diagnosed
with SSA/PNH in Feb, 2001. we have seen many
specialests in Minnesota, where we are from. These
Dr's came to the conclusion that a BMT was the only
possibility of a cure for my wife. We began
our research on the internet and found a small
article from Johns Hopkins in Baltimore. They have
been treating patients with a hi-dose chemotherapy,
with no introduction from other stem cells(no BMT).
On July 5, Julie and I began this treatment in
Baltimore. The survival odds of this treatment
are about 8out10 for survival! I am typing to
you from Julie's room, where we have been for 68
days. Her prognosis is good. We could be home in MN
within 2 weeks.
I just felt that others may want to research this
treatment. I recall my feelings when she was
diagnosed and wished for something like this chance
for a cure, with better odds than a BMT.
Jim maddern |
