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COUNTS BEGIN TO FALL IN SEPTEMBER 2005

Historical journal  http://aplasticcentral.com/AA_Members/bruce.htm

Current Journal  http://aplastic.livejournal.com/

After 3 years of marginal progress against AA I was recently presented with some alarming news. All my counts had dropped significantly from their "high" points in September of 2004:

Bruce WBC RBC HGB HCT PLT
Minimum 4 4.6 13.5 13.5 150
2001 3.5 1.8 7.0 20 7
2002 3 2.5 8.4 8.4 15
2003 2 3.0 11.7 32.6 23
2004 2.4 3.5 13 39 21
2005 1.7 2.3 9 27 17

 

Meanwhile, over a similar time frame my friend Marla reported significant progress as evidenced by the charts that follow.

Marla WBC RBC HGB Hct PLT
Minimum 4 4.6   13.5 150
N/A          
2002 3.0 2.1 9.1 28.2 15
2003 6.3 4.4 14.5 46.3 88
2004 5.0 4.1 13.8 44.7 94
2005 5.4 4.0 13.8 43.2 118

 

On a comparative basis, I am in blue and Marla is in maroon.

Now I never claimed to be a rocket scientist, but it appears that Marla has a better game plan.  She and I will be collaborating on what she has been doing differently.

I must point out that I did not follow the organic diet or other aspects of my regimen as closely as I could and should have.  The good news is I can give it another try starting right now and I have my best friend in the whole world leading the charge.  Sue is planning and cooking special meals, re-reading everything from before, encouraging, kicking my rear when necessary and has dramatically improved her own health over the last six months.  As my friends at KSP would say, "Bring it On!" 

Sue and I are not going to let this setback spoil our plans for active travel and relocating to a warmer climate for the winter months.  It may cause us to be a bit more cautious but we are not about to give up! On a very positive note, the setback is causing me to become an active participant again and I am rededicating myself to finding out what works and use it to help myself and others. (See journal below)

Marla credits MDS sufferer John Hess with the inspiration to try her natural approach and the table below outlines John's approach.  Hopefully we can all continue to learn from each other.

Extracted Items from John, Marla and My Approach - Checking for New Ideas

Marla:
  • Aerobic Exercise
  • Bounce on a Mini Trampoline - Get toxins moving
  • Deep Breathing to improve lymphatic flow
  • 30 Phlebotomies
  • Chemical Testing
  • Genetic Testing
  • B12
  • Fruit Smoothies - fresh organic oranges, kiwis, bananas, pineapple & water
  • Juicing
  • Raw Vegetables
  • Zinc, magnesium, selenium, manganese, MSM, flax/borage oil (2005 start)
     
John:
  • Aerobic Exercise
  • Bounce on a Mini Trampoline - Get toxins moving
  • Jason Winters Herbal Green Tea
  • Detoxify (Enema)
  • Raw Vegetables
  • 2 Garden of Life Primal Defense Tablets  [Garden of Life]
  • 8 Megazyme morning & evening Megazyme
  • 10 grams per day of ester C Vitamin C
  • NAC
  • Alpha Lipoic Acid
  • Folic Acid
  • CO Q10
  • a multivitamin and mineral supplement
  • and a number of food type supplements discussed in the diet section below.
     
 
Marla

Website

Blood draw for a complete chemistry panel including B12, folate, iron/ferritin, T4, and lipids.

10/11 Forum Post Extract

Along those lines, I've also read that certain vitamins and minerals are the same way--i.e. some people need more than others, so a one-sized recommendation for those can also potentially have different effects for different people. There's a book called Adrenal Fatigue, the 21st Century Stress Syndrome by James L. Wilson which has this to say about Vit C dosage:

"To find out how much vit C your body need, try a very simple test called the vit C loading test. On day one take 500mg of ascorbic acid w/250 mg of bioflavinoids. Increase your ascorbic acid by 500mg and you bioflavinoids by 250mg every hour until your bowel movements become somewhat loose and runny. Once you have achieved this level, then reduce your ascorbic acid by 500mg and your bioflavinoids by 250mg. This is usu. the amt of vit C your body need at this time. The most common point for this to occur is about 2K to 4K mg (2-4 grams) for people w/adrenal fatigue, but I have known people that required 15K to 20K mg (15-20 grams) a day in order to reach this point. Typically, the more chronic and severe your illness, the more vit C is necessary."

Among other interesting things Wilson says about Vit C here's another important one:

"Vit C, as it occurs in nature, always appears as a composite of ascorbic acid and certain bioflavinoids. It is this vit C complex that is so beneficial, not just ascorbic acid, by itself. Bioflavinoids are essential if ascorbic acid is to be fully metabolized and utilized by your body. The ratio of bioflavinoids to ascorbic acid should be apporx 1:2, that is 1 mg. of bioflavinoids for every 2 mg of ascorbic acid. Bioflavinoids basically double the effectiveness of ascorbic acid in your body and allow its action to be more complete. The kind of vit C you use makes a difference. Vit C is much more than ascorbic acid."

Bruce Note.This is very consistent with Sherry Rogers and Nutritional Healing which Sue and I are currently re-reading and documenting sources in a new database.
 

 

John:

1. DETOXIFY.  Toxins need to be removed from the body.  This is not only an initial but an ongoing process.  One simply cannot expect his body to perform as he would like if there is a bunch of junk clogging it up. 
a.  Put good stuff in.  Avoid the three whites.  White rice, white flour, and white sugar.  Processed foods are also to be avoided.  The closer the food or supplement is to its natural state the better.  See Diet section below.
b. Get bad stuff out.  Aerobic exercise is important. It not only gets things moving inside of the body but causes you to sweat.  Sweating is one way to rid the body of toxins.  I push myself.  I run.  If you can’t run, do what you can.  I also bounce on a mini trampoline.  I believe this gets toxins moving throughout my system.  I also take psyllium fiber, and Jason Winters herbal tea, http://www.sirjasonwinters.com/teas.htm both of which are intestinal cleansers.  Daily coffee enemas are an essential part of my cleansing program. The gallbladder is cleared and the liver is stimulated to work more efficiently to cleanse the system of toxins.   Drinking adequate water or teas is also essential to keeping things moving.  See Diet section below.


2. VITAMINS, MINERALS, AND ENZYMES.  The human body needs vitamins, minerals, and enzymes.  The right balance of nutrients balances the sympathetic and parasympathetic systems.  It is generally accepted that the best way to present these to the body is in the form of food--raw if possible.  It is never sufficient to assume that supplements alone will do the trick.  Foods lose a large percentage of their vitamins and enzymes when heated.  The importance of enzymes cannot be overemphasized.  Heat and processing destroy enzymes even more quickly than they destroy vitamins.  According to nutritionists Mary Swope PhD, David Darbro MD and others, enzyme destruction begins at 107 degrees F and is complete when the temperature reaches 122 degrees F. See A Cancer Battle Plan, Frahm, 1997, at 70.  The body not only receives enzymes from outside sources, but also manufactures enzymes throughout itself and especially in the liver and pancreas.  Enzyme supplements taken on an empty stomach are very important to overcome a disease situation. 

Coffee enemas appear to encourage the production of enzymes within the body since it stimulates the liver which is a major manufacturer of enzymes.  In my case, coffee enemas are done on a daily basis.  Although I found it hard to believe that something as bizarre as coffee enemas actually worked, after two years of coming across it in my readings, I finally gave in.  Much to my delight, my blood work showed significant improvement after I began the enzyme supplement/coffee enema approach.  It is extremely important to include supplements to replace the good bacteria and flora which are lost through the cleansing process of the coffee enemas.  I take two Garden of Life Primal Defense tablets [Garden of Life] morning and evening and eight Megazyme morning and evening as well as Ultra Flora Plus by Metagenics.  I also include plain yogurt, either goat or cow.
 
In terms of which vitamin supplements to take, I am somewhat in a state of flux.  Historically I have taken a wide variety of vitamins.  I am, however, impressed by the arguments regarding focusing on foods that provide these vitamins and minerals.  Nevertheless, I do take up to 10 grams per day of ester C vitamin C, NAC, alpha lipoic acid, folic acid, CO Q10, a multivitamin and mineral supplement, and a number of food type supplements discussed in the diet section below.

3.  EXERCISE.  I consider regular aerobic exercise to be very important.  It detoxifies.  It also helps to create an alkaline environment.  Exercise creates demand for oxygen, which encourages the body to produce more red blood cells and hemoglobin.  This is according to a recent article by Ralph Moss which also suggested that exercise is a way to avoid the need for Procrit. CancerDecisions.com-THE MOSS REPORTS: Newsletter (11/15/03) . CancerDecisions.com-THE MOSS REPORTS: Newsletter (11/22/03)

4. DIET.  Cars don’t run well on bad gas, and bodies don’t function well on a poor diet.  There isn’t a magic pill to restore a person to good health.  If one is used to the standard American diet (SAD) a lifestyle change is in order. 

There are certain dietary things that clearly should be avoided.  The three whites, processed foods, and alcohol are in that category.  I must confess to some imperfection in that on occasion I still will eat a bowl of ice cream, or a piece of bread, etc.--I allow for it.   If complete perfection is the standard, I might be too discouraged when I fall short.  

There are other dietary things that should always be included in a healthy diet.  The consumption of raw fruits and veggies is also a no-brainer for almost all of us. When cooking, steaming lightly is the recommended approach. 

Drinking at least half of a person’s body weight in ounces of alkaline or distilled water per day is essential.  I take mine in the form of mushroom, herbal, and other teas.  The mushroom tea I drink is put together by my wife and sister in law and includes mushrooms (reishi and chaga) and other ingredients (dried red dates, kamcho, kugicha, chagyak, and dang gwi) from all over the world.  These are traditionally used to maintain health and fight sickness, especially cancer. 

Other parts of my diet are not so clear cut in terms of general acceptance in the nutritional community.  According to Ralph Moss, most patients of Dr. Gonzalez who have blood disorders should include animal and fish protein in their diets. Dr. Gonzalez goes through a meticulous testing procedure in which he evaluates a person’s sympathetic and parasympathetic systems and prescribes a diet and supplement schedule accordingly. I include meat and poultry (preferably organic and pasture fed) in my diet.  I also drink raw milk.  The pasteurization and homogenization processes are very hard on milk nutritionally.  Non farm salt water fish is also something I consume.  I try to avoid fresh water fish because of the higher risk of contamination.  Raw, unfiltered, cold processed honey is actually alkaline producing, and contains important enzymes. Royal jelly, bee pollen, and propolis are also excellent.  I also take red ginseng, black sesame, and apricot kernels (amygdalin).  Only a few apricot kernels per day should be consumed, however.  Udo’s Choice  is an excellent blend of flax and other healthful oils that I have taken from the beginning.  In the morning I consume a vegetable juice blend using a Vita Mix blender.  I generally use Jason Winters tea and green tea (using alkaline water, of course) and include a variety of vegetables, tomato paste, powdered shiitake mushroom, seaweed, powdered ester C, and Green Magma barley grass. 

Cheri has also put together capsules of raw foods she has dried and ground up.  These include barley, dandelion tops, dandelion roots, pine needles, black beans, grape seed, dang kwi and brown rice.  Kyolic aged garlic formula #102, is very highly thought of and something I use daily.  I also drink Tahitian Noni Juice.

For snacks I eat raw veggies and nuts.  Organic, of course, is best.
According to my reading, there is also an order in which food should be eaten.  Fruit should be eaten alone and on an empty stomach.  Vegetables can be eaten with meat or with starch, but the three should not be consumed together (sometimes easier said than done). 

5. ALKALINITY.  Cancer and other adult onset diseases do not thrive in an alkaline and oxygen rich environment and are encouraged in an acidic environment.  Some foods promote an alkaline environment and some promote an acidic one.  Most fruits and raw vegetables are alkaline producing.  Some things which are acidic, however, may be a necessary part of a diet.  The body in fact is very skilled at maintaining the pH of different organs within tight parameters.  Some organs, such as the stomach and skin maintain acidic pH’s consistent with it’s designed function.  According to Weston Price, some of the healthiest peoples on earth had a diet that would be considered acidic forming.  I consume meat, fish, dairy, and chicken.  This makes it all the more important to consume large amounts of fresh fruits and veggies, which are generally alkaline.   All this having been said, however, my thought is that it is better to err on the alkaline side. Accordingly, I brew and drink large amounts of herb teas, mushroom teas, green tea etc. which are all brewed in alkaline water using an Alkalizer machine which separates source water into alkaline and acidic components.  An interesting discussion regarding alkalinity and health is found at the Price-Pottenger Foundation



6. EDUCATION.  I listened carefully to the suggestions of qualified health professionals.  Then I did my own research.  I continue to read and learn.  I can afford to be less critical of something that won’t hurt me.  I am more critical of a product that is recommended by a person who wants to sell it to me.  I don’t assume that my best information can only come from a highly degreed person.  Some of the best suggestions I have received have come from experience-rich non-degreed individuals who have information that makes sense according to the principles presented above.  I especially value the positive experiences of fellow travelers on the blood disease road.  I keep track of my tests and continually evaluate my healing modalities on an ongoing basis.  I try to be open-minded, since the best answer to my situation might be outside of the box.  I try to listen and be sensitive to what my body is telling me.  I never assume that I have arrived.  There is always something to learn. 

7. RELIGIOUS FAITH.  My Christian beliefs have been a source of great strength and comfort as I face the uncertainties of a potentially fatal illness.  God has given me a peace beyond myself.  I believe that I’m in a win-win situation.           

During my conversation with Marla in May 2004, I asked her how she is facing the future.  Marla seemed to be surprised that I was even asking such a question.  She stated to me that she has every intention to live a long and productive life and is planning accordingly.  That answer matches my feeling exactly.  Nevertheless, both Marla and I fully understand that it is God who will make the final decision.  God has, however, given each of us the tools to remedy the problems of life.  He expects us to use those tools.

If you have any further questions or comments, please email me at hessnhess@aol.com.

To your health,


John Hess

Bruce's Current Journal

  Since my Last transfusion   How ABOUT You?

 

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