| Update May 9, 2002
Good Research Tools:
http://www.nih.gov/news/stemcell/execsummary.pdf
- Thorough discussion of Stem Cell Research
http://www.btinternet.com/~randy.ramage/aamdsglossary_folder/index.html
- AA glossary courtesy of Randy Ramage
In hopes this may save you some time in learning how
to research an illness (not just AA). I had been
diagnosed for six months and had become frustrated by the lack of
good medical information online and walking out of the gift shop one
day asked an MD if there was a medical library at the U or R and
could I use it. He said "yep - in this building and I
don't know if you can use it or not".
We found the Miner Library at University of Rochester which was
indeed in the same building as Strong Memorial Hospital. Turns out
it is indeed open to the public and certainly to patients.
There was a research person (thanks Mary Ellen!) who helped get
us on the right track. She showed us how to enter OVID
which is an indexing tool, how to find clinical trial http://clinicaltrials.gov
and other useful tools.
We then went off on our own a bit and discovered a bunch of PC's
with local indexing access and internet access. We could search for
an article in medline (the private version of http://pubmed.com
and then literally walk into the stacks (a Room Full!) of medical
journals, pick out the one we wanted, make a copy and voila - some
fantastic information.
The library also has all the latest books on each discipline we
wanted to research - immunology, hematology, etc. And a couple
of really cool things made this site worthwhile. I could not
remember the clinical trials address above so I logged on to http://aplasticcentral.com
checked the links I had posted earlier and voila - there it
was. I then did a search on T cell depletion and came up with
a link that I added to the links. WOW - this really
works. We are getting all the information we need including
current full text articles in a matter of minutes!
My guess there is a similar library where you are being treated
or in a major university near you. Use it to find out
everything you can about your illness.
Happy Hunting
Bruce |
