Preliminary Results from Survey
|
| Based on 22 (14 Female, 8 Male) respondents,
can report the following: |
| Treatment Success |
ATG |
Cyclo |
Natural |
Cytoxin |
Herbal |
| 18 |
10 |
3 |
3 |
1 |
1 |
| |
|
|
|
|
|
| Remission |
9 Yes |
5 No |
|
|
|
| Longest Remission |
7 Yrs (ATG) |
4 Yrs (Cytoxin) |
2 Yrs (Natural) |
|
|
| Transfusion Free |
8 of 22 |
|
|
|
|
| Average # transfusions |
75 |
|
|
|
|
| Avg Days in Hosp |
30 |
|
|
|
|
| Diagnosis |
20 AA |
2 MDS |
|
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| |
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| |
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| Occupation |
| Computer Sales |
| House Wife |
| Student |
| Teacher |
| Medical Claim Negotiator |
| College Student |
| Mum/Cleaner |
| minor |
| Attorney |
| Child writer/artist |
| nurse |
| disabled |
| Supervisor |
| Telephone banking operator |
| Marketing / List Mgr |
| Student |
| computer programmer/analyst |
| Agent |
| student |
| CPA |
| teacher |
| Medications
before Diagnosis |
| Cyclosporine |
| hydrocortisone,
prednisone, cortisone |
| sulfa, methotrexate |
| orthotrycyclene
(birth control) |
| Adderall |
| Ceftin |
| naproxen |
| synthroid for
hypothyroidism |
| Oxymetholone/Prednison/ATG/Cyclosporine/Mycophenalate |
| Suspected
Cause |
| Toxic exposures |
| Idiopathic |
| Idiopathic |
| idiopathic |
| Autoimmune disorder |
| Exposure to benzene at work |
| exposure to benzene and other
chemicals |
| Ceftin (most likely) Parvovirus
(perhaps) Most likely a combination. |
| masqitoe spray |
| Chemo treatments three years ago |
| idiopathic |
| idiopathic |
| a strange 'virus' 9/02 and high
stress with dying mother at the same time |
| Idiopathic |
| Preexisting
Conditions |
| atopic dermatitis |
| Appendicitis |
| iflammatory arthritis(es) |
| Heptic liver failure |
| hepatitis that was non-diagnosible |
| anemia |
| Non-hodgkins Lymphoma |
| Current
Meds |
| Natural |
| Cyclosporine |
| Cyclosporine, Neumega, Protonix,
Trimterene |
| cyclosporine, prenisone, pepcid,
valtrex, magnesium |
| Cyclosporin, Milk of magnesia and
Megafol5 5 |
| Cyclo 200mg BID, Acyclovir 200mg bid |
| desferal |
| Cyclosporin and gcsf |
| cyclosporine |
| synthroid, vitamins/minerals, TCM
herbs |
| Cyclosporine |
| hormone replacement, bone density med |
|
