Be Patinet with ATG

From: Ulrike
Email: Ulrike Scharbau <Ulrike@SCHARBAU.DE>
Date: 5/29/2001
Time: 7:55:54 PM
Remote Name: 128.151.155.145

Comments

Hello, Bruce, Just visited your site, nicely done! To answer your question: I would wait some more time (I had 6 months between my two courses of ATG until doctors wanted to give it another try. Even then the response was extremely slow.) Don't give up too soon! (My experience in short: VSAA dx in 10/99 with ANC 0.03, plt tx weekly, RBC every 9 days on average, low-dose rabbit ATG in 10/99 and starting of cyclosporine, no response to ATG: ANC stabilized at 0.11 and tx dependence unchanged; additional dx of PNH in 3/00 meaning basically that my RBC die early; higher-dose horse ATG in 4/00 and only in 6/00 tiny sign of response: plt stable in the ten's for months, ANC constantly at or above 0.5 only in 11/00, and Hgb is still only just above 8 due to the PNH). If you have any questions feel free to ask. Ulrike, 33 dx VSAA 10/99 and PNH 3/00 ATG/cyclo x 2, currently cyclo