From: Laura Jaros
Date: 25 Oct 2004
Time: 09:58:59 -0400
Remote Name: 24.15.165.75
O.K., everyone out there. I told Lisa how helpful you were with me....She needs some help now. I already told her that the cyclo. level should be 200 to 300 and that it should definitely be monitored. Looks like the current doc. is handling it right by cutting back. I dont think they will need to take him off suddenly as long as they stay on top of things. If they dont seem to be doing that, you should stay on top of things (as you are) for them. There are other drugs out there being tried instead of cyclosporine. Check out the NIH website and look at the clinical trials. I printed some for Larrys doctor in case we were in the same situation where cyclo. cant be used. I hope you hear from other people here. Their words were priceless to us.......Laura
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